Tuesday, January 20, 2015

Blog #5: Chairman of Epilepsy Foundation, a Neurologist, Has Epilepsy

(This blog was originally posted on July 12, 2011)

 
 
Dr. Brien J. Smith, the medical director of the comprehensive epilepsy program at Spectrum Health Butterworth Hospital in Grand Rapids, Michigan, is the new chairman of the Epilepsy Foundation.
On June 23, 2011, the New York Times published an article about him in which Dr. Smith disclosed that he has epilepsy. He described his childhood experiences having unrecognized seizures that weren’t recognized as epilepsy until high school. Years later, now a doctor-in-training, he had a seizure at the hospital where he worked. The doctor said that medical and nursing staff panicked when they witnessed one of their own have a convulsion.
Epilepsy is a frightening and poorly understood condition. This may come as a surprise to many people, but as demonstrated by Dr. Smith’s anecdote, even general medical, surgical, and nursing communities need to be educated about it. Physicians seldom diagnose epilepsy in a patient who appears confused or has lost consciousness without the tell-tale shaking (convulsion) associated with epilepsy. This lapse is worrisome: symptoms of Post-Traumatic-Stress Syndrome, panic attacks, and even simple daydreams can mimic behaviors seen during the most common type of seizure, the complex partial seizure. Even the electroencephalogram can be “normal” if the person does not have a seizure while the test is being done.
A neurologist needs to question the patient, his family, and other observers to make an accurate determination that a seizure has occurred and to make the epilepsy diagnosis. The specialist will ask specific questions about imagined smells or tastes (hallucinations), adult bed-wetting, and biting the lips or tongue during sleep to elicit clues that can support the diagnosis. I provide a comprehensive description of the neurological examination that neurologists use to diagnose epilepsy in my recently completed, but not yet published novel, DINGS. Excerpts can be read on my website: LanceFogan.com.
 
 
 
Lance Fogan, M.D. is Clinical Professor of Neurology at the David Geffen School of Medicine at UCLA. DINGS is his first novel.
 
 
 

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